Patient information Gender, Blood group, Demographics, Referral status VWD diagnosis Diagnosing physician, Family history, Tests performed, VWD Type Initial VWD treatment Products used, Dates, Purpose (surgery/bleed*), Reason, Dosing, Number of doses given, Bottle/vial used, Treatment site VWD treatment in previous 3 years Products used, Dates, Purpose (surgery/bleed*), Reason, Dosing, Frequency of administration, Number of doses given, Bottle/vial used, Treatment site VWD: Von Willebrand Disease. *The type of bleed was coded by the physician as urinary tract, hemarthrosis, skeletal, gastrointestinal tract, head and neck, post-traumatic, menorrhagia, or other.

Table 1: Summary of Data Collected in Retrospective Chart Survey.