Valid cases Family members' mean (SD) Patients' mean (SD) p-value Effect size (95 % CI) ICC
Respect and integrity 72 4.11 (0.74) 4.10 (0.75) 0.311 0.01 (-031-0.34) 0.700
Planning and decision-making 72 3.86 (0.81) 3.74 (0.79) 0.238 0.14 (-0.19-0.46) 0.679
Information and knowledge 72 3.93 (0.90) 3.97 (0.78) 0.712 -0.05 (-0.37-0.28) 0.797
Motivation and encouragement 71 3.90 (0.87) 3.85 (0.81) 0.507 0.06 (-0.27-0.39) 0.755
Involvement of family 72 3.60 (1.15) 3.82 (1.13) 0.132 -0.19 (-0.52-0.14) 0.630
Possible response range 1-5.
Wilcoxon’s was used to compare means within the dyads.
Effect sizes should be interpreted as follows: ≥0.2 and <0.5, small; d≥0.5 and < 0.8=, moderate; and d ≥0.8, large effect.
ICC should be interpreted as follows: <0.20 = slight; 0.21-0.40 = fair; 0.41-0.60 = moderate; 0.61-0.80 = substantial; 0.81-1.00 = almost perfect.
Table 3: Experience ratings. Comparisons of PPRQ domain scores for patient-family dyads