Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provides strength and elasticity to the underlying structures in your body.Treatment Adults with vascular type EDS (type IV) are at risk for arterial aneurysm and rupture, noninvasive visualization of the arterial tree may be indicated.[15] High-dose (1-4 g/d) ascorbic acid (vitamin C) therapy has been tried and, in theory, has a potential effect. Clinical studies suggest that wound healing, even in patients not deficient in vitamin C, can improve with supplementation above the recommended daily allowance.

In patients with kyphoscoliosis type EDS, bleeding time, wound healing, and muscle strength seem to improve after 1 year of daily high-dose vitamin C therapy; however, high-dose vitamin C therapy is not considered the standard of care and requires medical clearance for use. Statistics These statistics are calculated extrapolations of various prevalence or incidence rates against the populations of a particular country or region.

The statistics used for prevalence/incidence of Ehlers-Danlos syndrome are typically based on US, UK, Canadian or Australian prevalence or incidence statistics, which are then extrapolated using only the population of the other country. This extrapolation calculation is automated and does not take into account any genetic, cultural, environmental, social, racial or other differences across the various countries and regions for which the extrapolated Ehlers-Danlos syndrome statistics. Major research Wearing a Compression Garment for Patients with Hypermobility Type of Ehlers-Danlos Syndrome Molecular Bases of Response to Copper Treatment in Menkes Disease, Related Phenotypes, and Unexplained Copper Deficiency