Patient |
Age |
Sex |
Race/Country |
Initial Presentation |
Anti-AQP4 |
EDSS |
Preventative Treatment |
Outcome |
1 |
49 |
F |
Black/Haiti |
Paraparesis, bilateral ON, Urinary Retention. |
+ |
6 |
Oral steroids |
Wheelchair bound, legally blind and incontinent to urine. |
2 |
25 |
F |
Hispanic/Dominican Republic |
Unilateral ON and TM |
+ |
2 |
Mycophenolate Mophetyl (initially failed steroids and azathioprine) |
Fully Functional, mild decrease in visual acuity. |
3 |
25 |
F |
African American/US |
Nausea, vomiting, hyponatremia, progressed to quadriparesis. |
+ |
4.5 |
Azathioprine |
Requires some assistance with long distances but mostly functional |
4 |
41 |
F |
Black/Haiti |
Severe TM with progressive quadriplegia |
+ |
7 |
Azathioprine |
wheelchair bound; requires assistance for most of her activities. Residual pseudoatetosis. |
5 |
19 |
F |
Black/Haiti |
TM Paraparesis – sensory loss |
+ |
7 |
Oral Steroids after receiving IVIG and PLEX |
Bilateral assistance for walking; requires assistance in most of her activities of daily living |
6 |
26 |
F |
Black/Granada |
ON |
+ |
6.5 |
Rituximab (failed repeat steroids and IVIG, PLEX, and azathioprine) |
Bilateral support and some assistance with her self-care |
7 |
52 |
F |
Black/Haiti |
Hiccup, vomiting, quadriparesis |
+ |
10 |
NA |
Patient died despite aggressive immune suppressive treatment in the acute phase |
8 |
46 |
F |
Hispanic/Mexico |
Recurrent paraparesis, Urinary Retention |
+ |
7.5 |
Azathioprine |
Wheelchair bound with some retention of self-care. |
9 |
36 |
F |
Black/US |
Hemiparesis progressed to quadriparesis |
+ |
7.5 |
Azathioprine |
quadriparetic, requiring assistance in most of her activities of daily living |
10 |
53 |
F |
Black/Haiti |
Paraparesis, Urinary incontinence |
+ |
4.0 |
Oral Steroids |
Functional in most of his activities |
11 |
12 |
F |
Black/Granada |
Intractable vomiting, hiccups, quadriparesis, diplopia, autonomic instability. |
+ |
6.0 |
Oral steroids+Azathioprine |
Requires some assistance with ADLs |
12 |
7 |
F |
African |
Diplopia, constipation |
+ |
3.5 |
Oral steroids |
Mostly fully functional |