Biobank ethics

Ethical issues are commonly present in many aspects of Biobanking. The fact that Bio banks deal with human samples, invading an individual autonomy or limiting self-control, provokes a number of ethical issues. Who is competent to give informed consent and donate a sample? When individuals donate part of their body to a bio bank, how is that human sample processed? Who is the owner of the sample? Who should decide how it should be used? Who has the right to know individual results of research? These and many more ethical dilemmas exist in the ethical framework of bio banks. With the recent rapid developments in Biobanking, all of these issues are magnified with plenty of further new questions continuously arising. Ethical framework has been the most controversial issue in the domain of bio banking. Thus, it is not surprising that there is a substantial literature focusing on ethical dilemmas in bio banking, such as informed consent, privacy, protection, and returning of results to participants. For many years, researchers at CRB have provided constructive advice on how to deal with ethical aspects of research using human tissue material and personal data. For more than 80 years tissue has been derived from human bodies, stored, distributed and used for therapeutic, educational, forensic and research purposes as part of healthcare routine in most western countries.

 

  • Virtual Biobanks
  • • Virtual Biobanks
  • Tissue Banks
  • Hematopoietic stem cell bank
  • Umbilical cord blood banks
  • Ethical and legal Issues

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Biobank ethics Conference Speakers