Challenges of Living with a Rare Diseases
Focusing within the coordination between medical, social and support services in order to handle the challenges that people living with a rare disease and their families around the world confront each day. Even if rare disease patients and their families face many challenges, enormous progress is being made every day. Most rare diseases have no cure, so living with a rare infection is an on-going learning experience for patients and families. Day-by-day, hand-in-hand, together we present a united voice to advocate for the treatments, care, resources and services we all need. Managing these care-related tasks alongside their usual daily activities such as work, school and leisure time can be challenging.
- Patient attrition
- Diagnosis
- Developing and using orphan medicinal products
- Access the treatment
Related Conference of Challenges of Living with a Rare Diseases
Challenges of Living with a Rare Diseases Conference Speakers
Recommended Sessions
- Challenges of Living with a Rare Diseases
- Clinical Research and Treatment
- Future of Rare Diseases Research
- Infectious Diseases
- Mystery Diagnosis of Rare Diseases
- Neglected Tropical Diseases
- Orphan Drug
- Rare Autoimmune Diseases
- Rare Chromosome Disorders
- Rare Diseases
- Rare Endocrine Genetic Diseases
- Rare Genetic Diseases
- Rare Haematology Diseases
- Rare Pediatrics Diseases
- Rare Skin Diseases