Legal Issues Related to Rare Diseases

The absence of lawful controls on treating the uncommon rare diseases in numerous nations in the world, because of patients and their families are getting affected with various diseases obstructions when requesting for professional help. The first country to pass and approve the Orphan Drug Act in USA, followed by Japan in 1993, and eventually the European Union in 2000. The absence of a special International Disease Classification about disease leading to the IDC blocks the usage of a framework for the patients who are experiencing these diseases in the world. The main motto is to focus on rare diseases from the aspect of acceptable strategies or unsatisfactory social results is of critical need. 

  • Regulations on rare diseases
  • Ethical issues

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