Tuberous sclerosis complex (TSC) is a genetic disorder that causes non-malignant tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs.
Prevalance of Tuberous sclerosis is reported to be less than 1 in 10,000 of population. Tuberous sclerosis is listed as a "rare disease" by the Office of Rare Diseases (ORD)
Specific medications may be prescribed for behaviour problems. Intervention programs including special schooling and occupational therapy may benefit individuals with special needs and developmental issues.
Prevention of the worse aspects of TSC amongst neonates including: Epilepsy, ASD, Intellectual impairment, SUDEP, skin rash, kidney & lung disease etc. is one of the objectives of TSC research.