alexa Attitudes towards Disclosure of Children’s Genetic Origins among Japanese Patients Using Assisted Reproductive Technology
ISSN: 2375-4508

Journal of Fertilization: In Vitro - IVF-Worldwide, Reproductive Medicine, Genetics & Stem Cell Biology
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Research Article

Attitudes towards Disclosure of Children’s Genetic Origins among Japanese Patients Using Assisted Reproductive Technology

Yuri Hibino*
Department of Environmental and Preventive Medicine, Graduate School of Medical Science, Kanazawa University, Japan
*Corresponding Author : Yuri Hibino
Department of Environmental and Preventive Medicine
Graduate School of Medical Science, Kanazawa University
Takaramachi, Kanazawa, 920-8640, Japan
Tel: +81(76)265-2219
E-mail:[email protected]
Received July 16, 2014; Accepted August 14, 2014; Published August 16, 2014
Citation: Hibino Y (2014) Attitudes towards Disclosure of Children’s Genetic Origins among Japanese Patients Using Assisted Reproductive Technology. J Fertil In Vitro IVF Worldw Reprod Med Genet Stem Cell Biol 2:130. doi:10.4172/2375-4508.1000130
Copyright: © 2014 Hibino Y. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

 

 

Abstract

Assisted Reproductive Technology (ART), such as Donor-assisted Insemination (DI) relying on anonymous sperm donors, has been used in Japan since the 1940s. Moreover, recent demographic changes such as delayed marriage and childbearing are contributing to increased demand for donor eggs from abroad. However, no official system for the collection and recording of gamete donors has existed in Japan until now. The objective of the present study was to examine the attitudes of infertile female patients toward two issues: 1) the disclosure of genetic information to their children born through donor assisted insemination and 2) the right of those children to know about their genetic origin. Data were collected from 740 infertile female Japanese patients via questionnaires distributed through 70 accredited ART clinics in Japan (response rate: 29.1%). In summary, infertile female patients in the present study preferred maintaining donor anonymity. On the other hand, they also believed that children have a right to know about their genetic origin if they so desire. The following regulations regarding donor-assisted conception were suggested. First, the relationship between donor and recipient should be defined by law. Second, the social stigma attached to use of a donor should be eliminated to make it easier for parents to disclose this information. Third, a donor registry system should be established to enable children to know whether they were born as a result of gamete donation or not, and if so, to obtain donor’s information in the absence of disclosure by their parents.

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