The Factors Most Important for Quality of Life in Children and Adolescents with Cerebral PalsyBrian Piazza*, William Hennrikus, Ryan Schell, Douglas Armstrong and Kristine Fortuna
Department of Pediatric Orthopaedics, Penn State College of Medicine, USA
- *Corresponding Author:
- Brian Piazza
Department of Pediatric Orthopaedics
Penn State College of Medicine
30 Hope Drive Hershey
PA 17033, USA
Tel: (717) 531-7006
Fax: (717) 531-0126
E-mail: [email protected]
Received date: December 16, 2015; Accepted date: January 19, 2016; Published date: January 25, 2016
Citation: Piazza B, Hennrikus W, Schell R, Armstrong D, Fortuna K (2016) The Factors Most Important for Quality of Life in Children and Adolescents with Cerebral Palsy. J Pediatr Neurol Med 1:102. doi:10.4172/2472-100X.1000102
Copyright: © 2016 Piazza B, et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Aim: This study’s purpose is to determine what themes patients with Cerebral Palsy (CP) rate most highly for importance in their quality of life. Additionally, we aim to determine and compare the parent’s perception of quality of life measures for their child with CP. Methods: Thirty one patients with CP and their guardians were administered a 50 item questionnaire. Results: When comparing the quality of life ratings of patients with CP to parents, five measures were statistically significant. Patients thought that playing video games (p=0.039), using the TV (p=0.004) and how their physical disability affects their appearance in comparison to their peers (p=0.018) were more important than their parents did. Parents thought their child’s future financial independence (p=0.017) and access to healthcare (p=0.008) were more important than their adolescent children did. Interpretation: Parents can accurately predict a few of the quality of life measures important to their child such as eating and drinking independently and going to school. However, disparities exist in many psycho-social domains. A better understanding of the importance of quality of life themes for patients with CP is important because it helps to direct care that can both take advantage of and improve what our patients feel is most important.