The Health Profile of People Living with Parkinson’s Disease Managed in a Comprehensive Care SettingMeg E Morris1, Anna T Murphy2,3*, Jennifer J Watts4, Damien Jolley3, Donald Campbell3, Sze-Ee Soh5,8, Catherine M Said1,6 and Robert Iansek2,3
- *Corresponding Author:
- Murphy AT
Kingston Centre, Monash Health
E-mail: [email protected]
Received date: November 26, 2014; Accepted date: June 15, 2015; Published date: June 22, 2015
Citation: Morris EM, Murphy AT, Watts JJ, Jolley D, Campbell D, et al. (2015) The Health Profile of People Living with Parkinson’s Disease Managed in a Comprehensive Care Setting. Aging Sci 3:135. doi: 10.4172/2329-8847.1000135
Copyright: ©2015 Morris, et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Background: Globally there are few reports of the impairments, disabilities and medications used in people living with idiopathic Parkinson’s disease. Caregiver characteristics and caregiver burden have seldom been reported. We examined the health status in a large cohort of people living with Parkinson’s disease and their caregivers managed in a comprehensive health care setting.
Methods/Design: A prospective, cross sectional analysis of impairments, disabilities and Parkinson’s disease medication use was conducted in a sample of 100 people with Parkinson’s disease rated I-IV on the modified Hoehn & Yahr scale. Participants were recruited from the Victorian Comprehensive Parkinson Program in Melbourne, Australia. Their caregivers were invited to provide their views on the burden of care, services provided and support received.
Results: The severity of impairments and disabilities was strongly associated with disease duration (mean of 5.5 years). Those with long standing disease or more severe disease also used more Parkinson’s disease medications and participated in fewer social roles than people who were newly diagnosed or mildly affected. The severity of impairments was strongly correlated with limitations in performing activities of daily living. Limitations in performing daily activities were also found to be a significant contributing factor for health-related quality of life (PDQ-39 SI β=0.55, p=0.000; EQ-5D SI β=0.43, p=0.001). People with Parkinson’s disease lived at home with relatives. The average caregiver was a spouse or child providing approximately 3.5 hours of care per day, with the capacity to provide 9.4 hours per day and had provided care for four years. Additional support was high (63%) for 2.5 hours per day.
Conclusion: The comprehensive care setting of this cohort describes a relatively benign condition despite a wide range of disease duration and severity. This report provides a baseline with which to compare other delivery models.