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Introduction: Rett syndrome (RTT) is a developmental disorder, affecting mainly females. Due to the challenges faced by
the individual with RTT and her family, her rehabilitation program should support her throughout different daily activities,
contexts, and surroundings. In such cases the primary care givers should implement a supplementary/home based intervention
that will enhance client's ability. This pilot study presents a physiotherapy support for RTT over long distances.
Methods: Five families of individuals with RTT living in Ireland participated in a six month bi-monthly home based program
via Skype consultation sessions by the first author residing in Israel. Program results were evaluated through the use of goal
attainment scale (GAS) and followed a Participatory action research (PAR) model, a collaborative study design where all
participants take part in assessing, goal setting, acting, reflecting and evaluating progress.
Results: All participants showed improvements in achieving their set goals and parent/care givers were extremely satisfied with
the engagement over large geographical distances.
Conclusions: This presentation will discuss a model for physical therapy tele health consultations in home based intervention,
which was applied by parents/caregivers, of children with RTT in accordance to the child's and the family's abilities. All
participant (presenting different degrees of severity) showed significant improvements thereby, supporting authors' belief that
constructing a home based intervention program is essential for the person with RTT to achieve her best state of being. The
GAS was found a useful tool to evaluate clients??? progress. Participatory action research (PAR) was found as a useful model
when implementing such a program.
Meir Lotan, MSc PT, PhD is a Physiotherapist working as Senior Lecturer at the School of Health Sciences, Department of Physical Therapy, Ariel University, Israel. He is affiliated with the Israeli National Rett Syndrome Evaluation Team and is a world expert in Physical Therapy for Rett syndrome. He has a special interest in physiotherapy and persons with intellectual disability, children with autism, Snoezelen and physical activity for people with intellectual disability.