Respite For Parents Of Children Who Require Complex Care | 63108
Journal of Nursing & Care
Our Group organises 3000+ Global Conferenceseries Events every year across USA, Europe & Asia with support from 1000 more scientific Societies and Publishes 700+ Open Access Journals which contains over 50000 eminent personalities, reputed scientists as editorial board members.
Current literature states that advances in nursing and medical care and developments in pharmaceutical and health
technologies have led to an increasing number of severely disabled children who require complex health care. These
children who require complex care are being cared for in their homes by their parents. The purpose of this study was to
better understand parents’ caregiving experiences and to explore the values, beliefs and practices that influence parents’ use
and satisfaction with respite services. An ethnographic study involving 19 mothers, four fathers and four grandmothers and
three grandfathers of children between the ages of eight and 16 years who required complex care and their respite providers,
including 13 nurses and four social workers from three counties in Northwest England was conducted. Data were collected
through in-depth interviews, participant observation and document review. The context of caring for a child with complex care
needs was described and four broad themes were identified in the data. These themes include: parents caring, caring and the
impact on parental identity, the nature of respite and fair play. These themes will be discussed in the presentation.
Dr. MacDonald completed a Master’s degree in Nursing at the University of Toronto, Canada and a PhD at the University of Manchester in the UK. Currently she is a Professor in the Faculty of Nursing at the University of New Brunswick (Canada). Dr. MacDonald’s doctoral work examined respite for parents who were caring for children who required complex care. This paper comes from that work. Dr. MacDonald has three children of her own.