Author(s): Whittemore R, Jaser S, Chao A, Jang M, Grey M
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Abstract PURPOSE: The purpose of this review is to describe the prevalence of psychological distress in parents of children with type 1 diabetes (T1DM), the relationship between parental psychological distress and health outcomes, and parents' psychological experience of having a child with T1DM. Clinical and research implications are presented. METHOD: A systematic mixed-studies review was undertaken to review the quantitative and qualitative research on the parental experience of having a child with T1DM. A total of 34 articles met the inclusion criteria and were included in the review. RESULTS: The prevalence of parental psychological distress across all studies ranged from 10\% to 74\%, with an average of 33.5\% of parents reporting distress at diagnosis and 19\% of parents reporting distress 1 to 4 years after diagnosis. Parental psychological distress in parents of children with T1DM, regardless of how it was defined, was associated with higher child self-report of stress and depressive symptoms, more problematic child behavior, and lower child self-report of quality of life. Parental psychological distress also had negative effects on diabetes management. Themes of the qualitative synthesis indicated that parents perceived T1DM as a difficult diagnosis that contributed to significant family disruption. Adjustment occurred over time; however, ongoing stress was experienced. CONCLUSIONS: Screening for psychological distress in parents of children with T1DM is indicated, and preventive interventions are needed.
This article was published in Diabetes Educ
and referenced in Journal of Psychology & Psychotherapy