Author(s): Burns TM, Graham CD, Rose MR, Simmons Z
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Abstract In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for amyotrophic lateral sclerosis, muscle diseases, myasthenia gravis, and polyneuropathy. We also review some of what is known about QOL for patients with these neuromuscular disorders. Copyright © 2012 Wiley Periodicals, Inc.
This article was published in Muscle Nerve
and referenced in International Journal of Neurorehabilitation