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Research Paper Open Access
Objectives To develop and evaluate an information sheet in order to e¡ectively increase background knowledge about medical research, including reasons for participation, risks and beneÃ Â½ ts and the processes of recruitment and consent.Design Recorded telephone questionnaire conducted at least 24 hours after receiving the information lea?flet.Setting Recruitment from antenatal/paediatric clinics and Newcastle-under-Lyme town centre.Participants Fifty recruits of whom 37 gave interviews.Main outcome measure Understanding of the lea?flet as judged by answers to the speciÃ Â½ c questions.Results In general the understanding of the leaflet was good and 90% of the participants indicated that they had understood most of it. It was thought to be generally informative. The question that caused greatest di¤culty related to the correct explanation of informed consent, with only 65% giving a correct response. Other areas of di¤culty related to questionsabout whether new treatments would be better or worse than standard treatments and details of consent in children. It was suggested that examples would be a helpful addition to the lea? et. Having read the leaflet, more than 70% of the participantswould be prepared in principle to participate in research. Less than 10% felt that they would be less likely to participate in research after reading the leaflet.Conclusion The idea of providing a general leaflet about research was supported by the results of the survey. A number of areas of improvement were identiÃ Â½fied. The lea? et has now beenmodiÃ Â½ ed to take account of these suggestions.
Innovative primary care, Primary care medicines, Advanced concepts in primary care