alexa Japan Society for Hematopoietic Cell Transplantation

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Japan Society for Hematopoietic Cell Transplantation

JSHCT (Japan Society for Hematopoietic Stem Cell Transplantation) was initiated as The Nation-wide Gathering for Friendly Discussion about Bone Marrow Transplantation in 1978 and changed its naming to Bone Marrow Transplantation Study Group in 1980. At the 13th Annual Meeting in 1991, when the 2nd Annual Meeting of Asia-Pacific Blood and Marrow Transplantation Group (APBMT) was jointly organized, the group expanded its membership to nurses and the other co-medicals, had the bylaws and elected the officers. At the 19th Annual Meeting in 1996, the group developed to Japan Society for Hematopoietic Cell Transplantation (JSHCT) and in 2006, JSHCT was approved to be NGO under the Japanese Law. JSHCT has now 2,300 members of physicians, nurses, the other co-medicals, donor and clinical coordinators, volunteers and pharmaceutical companies. JSHCT has been primarily the academic society for transplant clinicians but recently it is expanding its interests to cell therapy and regenerative medicine. The core activities of JSHCT are consisted of organizing annual congress, publishing quarterly JSHCT Letters, managing the data centres for transplant patient and donor registration, publishing Annual Report of Nationwide Survey for transplant recipients, promoting more than 20 working groups, steering more than 10 committees and publishing multiple guidelines for hematopoietic stem cell transplantation. The members of JSHCT are playing key-roles for steering JMDP (Japan Marrow Donor Program), JCBBN (Japan Cord Blood Bank Network), APBMT (Asia-Pacific Blood and Marrow Transplantation Group) and WBMT (Worldwide Network for Blood and Marrow Transplantation). JSHCT is also deepening the relationships with other national and international academic societies.

Japanese Data Center for Hematopoietic Cell Transplantation (JDCHCT) collects and analyses recipient-, donor-, and outcome- information of the hematopoietic stem cell transplantation (HSCT) in Japan. Our activities contribute to gain precise activity information of HSCT in Japan, which is useful for patients who are suffering from hematology-oncology or other diseases requiring HSCT and also for transplant centres. More importantly, the HSCT outcome database enables to perform high quality registry studies or supports clinical trials for HSCT, which leads to improvement and better outcome of HSCT. The JDCHCT performs data collection, data management, and statistical analyses to promote clinical research in HSCT.HSCT recipient-, donor- and outcome- data are collected by using Transplant Registry Unified Management Program (TRUMP) in collaboration with Japan Society for Hematopoietic Cell Transplantation, Japan Society for Paediatric Hematology and Oncology, Japan Marrow Donor Program, Cord Blood Banks and Japanese Red Cross Society. The JDCHCT also collaborates with international related organizations including Worldwide Network for Blood and Marrow Transplantation, Asia-Pacific Blood and Marrow Transplantation Group, Center for International Blood and Marrow Transplant Research, and European Group for Blood and Marrow Transplantation.

There are 4 registries of hematopoietic cell transplantation in Japan; the Japan Society for Hematopoietic Cell Transplantation (JSHCT), Japanese Society of Paediatric Haematology, Japan Marrow Donor Program, and Japan Cord Blood Bank Network; each play an important role in society by reporting the number and outcomes of transplantations and contributing new findings obtained from studies on individual topics. However, there have been a number of issues with the difficulty of analysing data in overlapping registries and multiple databases at centers affiliated with each of the 4 registry organizations. JSHCT was pivotal in orchestrating the computerization and unification of hematopoietic stem cell transplantation registries for the purpose of resolving these issues and providing a more accurate awareness of hematopoietic stem cell transplantations being performed in Japan. JSHCT played a central role in developing the "Transplant Registry Unified Management Program (TRUMP)" to enable transplantation institutes to manage patient information with emphases on convenience to institutes, safety of patient information, and quality of data management. While enhancing domestic registries, the program seeks to coordinate with other hematopoietic cell transplantation registries around the world to contribute to the development of registries throughout Asia.

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