Back

Biography

Melanie Köller works as a Childrens Nurse since 1997. In 2006 she graduated from the University of Applied Sciences Bielefeld as a Certified Nursing Pedagogue. Her experience in the field of Cystic Fibrosis care covers nearly 16 years in one of the greatest special clinic of rehabilitation on the Island of Amrum. Since 2014 she is in the board of the Care Committee of the Mukoviszidose e.V.. She has published several posters for the German Congress for CF in Würzburg about salutogenesis, history of caring CF in Germany and the advantages of rehabilitation by CF.

Abstract

The Care Committee of the Mukoviszidose e.V. (Chairwoman C. Meyer, University of Tübingen, College of Medicine) has drawn up a completely revised version of the german guidelines to ``Care in Cystic Fibrosis''. It addresses all nursing staff concerning children, adolescents or adults with cystic fibrosis (CF) either in an inpatient and outpatient setting or for rehab clinics. Since the first edition of the German Guidelines to Care in Cystic Fibrosis which had been published in 1998 the guidelines are being revised regularly. The information material evolves along with the increased life expectancy of cystic fibrosis patients and improved quality of life which is described by CF patients and is observed by the therapeutic CF team. The treatment of secondary diseases like CFDR (CF related diabetes) which comes along with an increased life expectancy has been added over the years. Therefore, it is essential that within such a complex disease pattern, professional experience of care staff who worked in specialized CF care centers (50+ patients per year) for many years has been made available for other nursing staff or beginners. This is especially important in the context of the heterogeneous characteristics of this disease. In many cases it can be often seen that the quality of the care for CF patients depends on the know-how and experience of the interdisciplinary therapists team. Moreover, it depends also on the knowledge which the patient him-/herself have gathered over the years and, of course, its relatives especially parents or partner.(Up