Tuberous sclerosis, also known as tuberous sclerosis complex, is a rare genetic condition that causes mainly non-cancerous (benign) tumours to develop in different parts of the body.
Prevalance of Tuberous sclerosis is reported to be less than 1 in 10,000 of population. Tuberous sclerosis is listed as a "rare disease" by the Office of Rare Diseases (ORD)
For tumors in the brain, surgery is sometimes used to permanently remove tumors that are relatively few in number and easily accessible by the surgeon.
Prevention of the worse aspects of TSC amongst neonates including: Epilepsy, ASD, Intellectual impairment, SUDEP, skin rash, kidney & lung disease etc. is one of the objectives of TSC research.