Tuberous sclerosis is a rare, multi-system genetic disease that causes benign tumors to grow in the brain and other vital organs like kidneys, heart, eyes, lungs, and skin.
Prevalance of Tuberous sclerosis is reported to be less than 1 in 10,000 of population. Tuberous sclerosis is listed as a "rare disease" by the Office of Rare Diseases (ORD)
There is no cure for TSC, although treatment is available for a number of the symptoms. Antiepileptic drugs may be used to control seizures.
Prevention of the worse aspects of TSC amongst neonates including: Epilepsy, ASD, Intellectual impairment, SUDEP, skin rash, kidney & lung disease etc. is one of the objectives of TSC research.