| Experiences with research including invitations to participate |
| Experience with informed consent forms and procedures |
| Relationship with the researchers suggesting enrollment |
| Factors that influence decision to join: illness, compensation, altruism, personal benefits |
| Role of funding source, purpose of study, and researcher compensation on decisionmaking |
| Perception of voluntarism (ability to decline or withdraw, ‘gentle coercion’?) |
| Perception of anonymity and confidentiality |
| Impact of participant vulnerabilities |
| Impact of perceived risks and benefits |
| Future willingness to join a research study |
| Information subjects want and need to make informed decisions |
