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| Figure 5: Patients / Parents of Legal Guardian’s response to the CCBR BioBank’s two step consent process. CCBR BioBank Survey Participant’s Response to the following question “The CCBR BioBank intentionally set up a process by which your initial contact with the CCBR BioBank was via your doctor who asked you for a verbal consent only. The BioBank Coordinator then followed up with you in the weeks after your diagnosis for a signed formal consent. Please tick the boxes that you agree with regarding your impression of this 2 stage process.” |
