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conferenceseries
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Volume 9
Journal of Health & Medical Informatics
ISSN: 2157-7420
Medical Informatics 2018
July 05-06, 2018
July 05-06, 2018 | Berlin, Germany
6
th
International Conference on
Medical Informatics & Telemedicine
PISCES: LEARNING FROM PEOPLE WITH EPILEPSY AND THEIR CARE-PARTNERS
ABOUT HOWAN ELECTRONIC PATIENT PORTAL CAN IMPROVE CLINICAL CARE
Kevin Power
a
, Mary Fitzsimons
a
, Elizabeth Comerford
a
, Maire White
b
, Norman Delanty
b
and
Colin Doherty
c
a
Royal College of Surgeons, Ireland
b
Beaumont Hospital, Ireland
c
Saint James Hospital, Ireland
Statement of the Problem:
To learn from people with epilepsy and their care-partners (their families/carers) about how the
Irish epilepsy ePortal can improve clinical care. With the advent of electronic health records, there is a move towards involving
patients as partners in their healthcare by providing them with access to their own health data via electronic patient portals
(ePortal). For example, a recently developed ePortal to the Irish National Epilepsy Electronic Patient Record (EPR) provides
access to summary medical records, tools for patient reported outcomes (PROM), health goal-setting and preparation for
clinical appointments.
Methodology & Theoretical Orientation:
A socio-technical process was employed to co-design, develop and implement
the epilepsy ePortal involving 30 families/care-partners of people with epilepsy who also have an intellectual disability (ID).
Participants engaged in usability and utility testing which involved a face to face meeting to learn about the ePortal, register for
a user account and evaluate its structure and content.
Conclusion & Significance:
Family members/care-partners responded positively to the ePortal and indicated that it can help
improve: information sharing between clinicians and care partners; create a passport between different healthcare settings (e.g.
primary care to hospital). Elderly parents of person with epilepsy (PWE) valued the ePortal as a tool for facilitating shared
care between family members. Clinical processes that may benefit from implementation of patient portals include: the care of
PWE in the ID residential setting; young adults transitioning from paediatric to adult services; cross-sectoral integrated care
(e.g. community, primary and hospital-based care); patient and care partner education. ePortals have the potential to promote
personalization care by improving patient involvement in clinical decision making, engage them as quality and safety partners,
and help clinicians be more responsive to patient needs.
Biography
Kevin Power is the Requirements Engineer and Implementation Manager for the Epilepsy Lighthouse Project (PISCES). The Pisces Lighthouse project is funded by
e-Health Ireland and HSE to help build an understanding of the benefits of eHealth technologies in the Irish Healthcare System. He has his expertise in investigating
requirements engineering and implementation processes in the Irish health care arena.
kevinpower@rcsi.comKevin Power et al., J Health Med Informat 2018, Volume 9
DOI: 10.4172/2157-7420-C1-021