Batten Disease Support and Research Association

BDSRA is committed to subsidizing research for medications and cures, advancing education, raising awareness, providing family support services, and advocating for legislative action. Established in 1987, by parents seeking to build a connecting link for those diagnosed with Batten disease, BDSRA is presently the biggest backing and research association committed to Batten disease in North America. BDSRA trusts that to viably unwind the secrets of Batten disease, the world of medicinal science, research, and families must cooperate toward an objective: to find medications and cures while guaranteeing a superior quality of life for those living with the disease.

BDSRA is devoted to subsidizing research for medications and cures, giving family bolster administrations, propelling instruction, bringing issues to light, and supporting for authoritative activity. Established in 1987, by guardians trying to construct a system for those determined to have Batten disease, BDSRA is presently the largest backing and research association devoted to Batten disease in North America. BDSRA trusts that to adequately unwind the puzzles of Batten malady, the universes of therapeutic science, exploration, and families must cooperate toward a shared objective: find medicines and cures.

The Batten Disease Support and Research Association (BDSRA) is the biggest backing and research association in North America for families influenced by this disease. Notwithstanding BDSRA support in the United States and Canada, there are BDSRA sections in South America, Australia, New Zealand and South Africa, just to give some examples. BDSRA at present serves more than 1,200 families around the world. There are comparable family care groups in the United Kingdom, Holland, Belgium, Germany, Norway, Denmark and different nations. These care groups for the most part stay inside the limits of these countries.

BDSRA is additionally an individual from the recently shaped Batten Disease International Alliance (BDIA), a union of all Batten ailments backing and research bunches that is headquartered in London.