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In scientific research, the right to privacy versus the responsibility of society to conduct valuable medical research is an on-going issue of debate. A major topic in this debate is that of ‘nourishing’ a patient’s trust. Medical research would not be possible without the patient’s trust: when patients are not ensured and convinced that their private information is handled confidentially, they may not be inclined to participate. Instructions on how to prevent privacy violations within clinical research have been published, e.g. not discussing patients in the public area and following strict security protocols when working with electronic data. However, even when professionals follow these rules and regulations carefully, there can be a possibility or threat of data leaking.
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