Journal of Palliative Care & Medicine
Open Access

Paediatric palliative care is a specialized field that demands a unique set of skills and profound compassion. This article delves into the qualitative investigation conducted by a home-based multidisciplinary healthcare group, exploring the experiences and perspectives of paediatric palliative care workers [1]. These dedicated professionals play a pivotal role in providing comfort and support to children facing life-limiting illnesses and their families.

The role of paediatric palliative care workers

Pediatric palliative care professionals play a crucial role within a collaborative and multidisciplinary healthcare framework, bringing together diverse expertise such as physicians, nurses, social workers, and other specialists. Their overarching goal is to significantly enhance the quality of life for children who are contending with serious illnesses [2]. This commitment extends well beyond the conventional scope of managing physical symptoms. In their comprehensive approach, these professionals actively engage with the multifaceted dimensions of a child's well-being, delving into the emotional, social, and spiritual aspects. Recognizing that the impact of serious illnesses extends beyond the individual child, they also address the broader needs of the family unit. By integrating this holistic perspective into their care strategies, pediatric palliative care workers not only aim to alleviate the physical distress associated with illnesses but also strive to provide meaningful support for emotional resilience, social connectedness, and spiritual well-being [3]. This collaborative and comprehensive approach ensures that the care provided is tailored to meet the unique and evolving needs of both the child and their family, fostering a more compassionate and effective healthcare experience.

Qualitative investigation methodology:The qualitative investigation aimed to gain a deep understanding of the challenges, rewards, and unique aspects of providing palliative care to paediatric patients. The research team conducted in-depth interviews, focus group discussions, and observations within the home-based care setting to capture the multifaceted nature of this healthcare provision [4].

Themes and findings: Compassion in Action: Paediatric palliative care workers highlighted the significance of compassion in their role. They described the profound connections formed with the children and their families, emphasizing the importance of being present emotionally and offering unwavering support during difficult times [5].

Challenges and coping mechanisms: The emotional toll of caring for children with life-limiting illnesses was a recurrent theme [6-9]. Participants discussed the coping mechanisms they employ, such as peer support, reflective practices, and ongoing training to manage the emotional challenges associated with their work.

Collaborative multidisciplinary approach:The study illuminated the collaborative nature of paediatric palliative care. Workers emphasized the importance of effective communication and teamwork within the multidisciplinary group, ensuring a holistic approach to care that addresses various aspects of the child's well-being [10].

Building resilience in families-navigate the complex challenges:Paediatric palliative care workers play a pivotal role in empowering families to navigate the complex challenges associated with their child's illness. Educating families about the available resources, involving them in decision-making, and fostering resilience emerged as crucial components of their work. Despite the emotional demands, participants expressed a sense of fulfillment and personal growth derived from their work, life-limiting illnesses. The opportunity to make a positive impact on the lives of children and families, coupled with continuous learning, contributed to a profound sense of purpose.

Conclusion

The qualitative investigation into paediatric palliative care workers within a home-based multidisciplinary healthcare group sheds light on the compassionate and challenging nature of their roles. By understanding their experiences, we gain valuable insights into the factors that contribute to effective paediatric palliative care. This research not only acknowledges the dedication of these professionals but also emphasizes the importance of ongoing support and resources to facilitate their crucial work in providing comfort and care to those who need it most.

Acknowledgement

Not applicable.

Conflict of Interest

Author declares no conflict of interest.

1. Korzeniewska-Eksterowicz A, Przysło Ł, Grzelewski T, Stolarska M, Młynarski W, et al. (2010) Job Satisfaction among Health Professionals of Home Hospice for Children of Lodz Region. Adv Palliat Med 9:67-72.

Google Scholar

2. Liben S, Papadatou D, Wolfe J (2008) Paediatric Palliative Care: Challenges and Emerging Ideas. Lancet 371:852-864.

Indexed at, Google Scholar, Crossref

3. McConnell T, Porter S (2017) The Experience of Providing End of Life Care at a Children’s Hospice: A Qualitative Study. BMC Palliat Care 16:1-6.

Indexed at, Google Scholar, Crossref

4. Tong A, Sainsbury P, Craig J (2007) Consolidated Criteria for Reporting Qualitative Research (COREQ): A 32-Item Checklist for Interviews and Focus Groups. Int J Qual Health Care 19:349-357.

Indexed at, Google Scholar, Crossref

5. O’Brien, B.C.; Harris, I.B.; Beckman, T.J.; Reed, D.A.; Cook, D.A. Standards for Reporting Qualitative Research: A Synthesis of Recommendations. Acad. Med. 2014, 89:1245-1251.

Indexed at, Google Scholar, Crossref

6. Sgourakis G, Gockel I, Karaliotas C, Moehler M, Schimanski CC, et al. (2012) Survival after chemotherapy and/or radiotherapy versus self-expanding metal stent insertion in the setting of inoperable esophageal cancer: a case-control study. BMC Cancer 12:70.

Indexed at, Google Scholar, Crossref

7. Stahl M, Budach W, Meyer HJ, Cervantes A (2010) Esophageal cancer: Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol 21:46-49.

Indexed at, Google Scholar, Crossref

8. Christie NA, Buenaventura PO, Fernando HC, Nguyen NT, Weigel TL, et al. (2001) Results of expandable metal stents for malignant esophageal obstruction in 100 patients: short-term and long-term follow-up. Ann Thorac Surg 71:1797-1801.

Indexed at, Google Scholar, Crossref

9. Conio M, Repici A, Battaglia G, De Pretis G, Ghezzo L, et al. (2007) A randomized prospective comparison of self-expandable plastic stents and partially covered self-expandable metal stents in the palliation of malignant esophageal dysphagia. Am J Gastroenterol 102:2667-2677.

Indexed at, Google Scholar, Crossref

10. Lightdale CJ, Heier SK, Marcon NE, McCaughan JS Jr, Gerdes H, et al. (1995) Photodynamic therapy with porfimer sodium versus thermal ablation therapy with Nd:YAG laser for palliation of esophageal cancer: a multicenter randomized trial. Gastrointest Endosc 42:507-512.

Indexed at, Google Scholar, Crossref