ISSN: 2165-7386

Journal of Palliative Care & Medicine
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  • Opinion Article   
  • J Palliat Care Med, Vol 15(4)
  • DOI: 10.4172/2165-7386.1000763

Volunteer Palliative Care Enhancing Social Support and Quality of Life in Patients with Advanced Chronic Diseases

Ahmed El-Sayed*
Institute of Palliative and Pain Management, University of Khartoum, Sudan
*Corresponding Author: Ahmed El-Sayed, Institute of Palliative and Pain Management, University of Khartoum, Sudan, Email: ElSayedA@khartoum.edu.sd

Received: 01-Apr-2025 / Manuscript No. jpcm-25-163854 / Editor assigned: 04-Apr-2025 / PreQC No. jpcm-25-163854 (PQ) / Reviewed: 18-Apr-2025 / QC No. jpcm-25-163854 / Revised: 22-Apr-2025 / Manuscript No. jpcm-25-163854 (R) / Published Date: 30-Apr-2025 DOI: 10.4172/2165-7386.1000763

Abstract

Volunteer palliative care has emerged as a valuable complement to professional healthcare services, enhancing social support and quality of life for patients with advanced chronic diseases. This article investigates how trained volunteers provide emotional companionship, practical assistance, and community connection, addressing gaps in traditional palliative care. By fostering human connection and reducing isolation, volunteers contribute to patients’ psychological well-being and overall satisfaction with care. The study reviews volunteer programs, evaluates their impact, and discusses their potential to improve end-of-life experiences, emphasizing the unique role of non-clinical support in holistic care for this population.

Keywords

Volunteer palliative care; Social support; Quality of life; Advanced chronic diseases; Emotional companionship; Isolation; Community connection; Psychological well-being; Holistic care; End-of-life support

Introduction

Advanced chronic diseases, such as cancer, heart failure, and neurodegenerative disorders, impose significant physical and emotional burdens on patients, often leading to social isolation and diminished quality of life. Palliative care seeks to alleviate these challenges through symptom management and emotional support, yet resource constraints and clinical focus can limit its ability to address patients’ social needs. Volunteer palliative care offers a solution, deploying trained individuals to provide non-medical assistance—ranging from companionship to help with daily tasks—within patients’ homes or hospice settings [1,2].

Volunteers, distinct from healthcare professionals, bring a personal touch to care, emphasizing presence and empathy over clinical intervention. This human-centered approach aligns with the holistic goals of palliative care, aiming to enhance dignity and comfort in the face of terminal illness. As healthcare systems grapple with aging populations and rising demand, volunteer programs represent a scalable, cost-effective way to bolster support networks. This article examines the methods of volunteer palliative care, assesses its outcomes, and discusses its implications for patients with advanced chronic diseases [3,4].

Methods

This article draws on evidence from peer-reviewed studies, program evaluations, and qualitative reports published between 2019 and 2025. A literature search was conducted using databases like PubMed, JSTOR, and Google Scholar, with terms including “volunteer palliative care,” “social support,” “quality of life,” and “advanced chronic diseases.” Studies were included if they evaluated volunteer interventions for adult patients with life-limiting conditions, focusing on social and emotional outcomes rather than clinical metrics alone [5,6].

Data were collected from patient-reported measures (e.g., quality-of-life scales, loneliness indices), caregiver feedback, and volunteer logs detailing interaction frequency and type (e.g., conversation, errands, respite care). Programs typically involved volunteers trained in active listening, boundaries, and palliative care principles, deployed for 2-10 hours weekly per patient. Effectiveness was assessed using tools like the UCLA Loneliness Scale, the Functional Assessment of Chronic Illness Therapy (FACIT), and satisfaction surveys. Comparative analyses with control groups receiving only professional care were included where available, though variability in program design limited standardization [7-10].

Results

Volunteer palliative care significantly enhanced social support and quality of life for patients with advanced chronic diseases. In a 2022 study of 180 cancer patients, those paired with volunteers reported a 30% reduction in UCLA Loneliness Scale scores after 12 weeks, compared to a 5% decrease in a non-volunteer group. Quality of life, measured by FACIT scores, improved by 25% in a 2023 hospice program involving 100 patients with mixed diagnoses, with 70% attributing gains to regular volunteer visits.

Emotional companionship was a key benefit, with 85% of participants in a multi-site evaluation describing volunteers as “a friend who listens,” easing anxiety and depression. Practical support—such as grocery shopping or transportation to appointments—freed up time for 60% of caregivers, reducing their stress by 20% per self-reports. Volunteers also facilitated community connection, with 50% of patients in a 2024 study engaging in social activities (e.g., virtual book clubs) they would have otherwise missed.

Satisfaction was high, with 90% of patients and families rating volunteer care as “essential” or “very helpful.” Programs averaged 4-6 volunteer hours weekly per patient, with no significant cost to healthcare systems beyond initial training. Challenges included volunteer retention, with 15% attrition due to emotional fatigue, and inconsistent availability in rural areas, affecting 20% of potential recipients. Despite these limitations, the absence of adverse effects underscored the intervention’s safety and feasibility.

Discussion

The results affirm volunteer palliative care’s capacity to enhance social support and quality of life for patients with advanced chronic diseases. By filling emotional and practical gaps left by overburdened clinical teams, volunteers address a critical dimension of holistic care: the need for human connection. Loneliness, a pervasive issue in end-of-life settings, is mitigated through regular, empathetic interactions, offering patients a sense of belonging and validation. This aligns with psychological theories of social support, which link interpersonal bonds to reduced stress and improved resilience.

The practical assistance provided by volunteers—though seemingly minor—has a ripple effect, easing caregiver burden and enabling patients to maintain independence longer. For example, a volunteer fetching medications allows a patient to avoid exhausting outings, preserving energy for meaningful activities. Community-building efforts, such as organizing small gatherings, counteract the isolation imposed by disease progression, fostering a sense of normalcy and purpose. These contributions, while non-medical, amplify the effectiveness of professional palliative care, creating a more comprehensive support system.

Implementation challenges merit attention. Volunteer burnout, driven by the emotional intensity of working with dying patients, suggests a need for robust support systems, including debriefing and mentorship. Geographic disparities highlight inequities in access, particularly in rural regions where volunteer pools are smaller. Training quality also varies, with some programs lacking depth in cultural competence or disease-specific knowledge, potentially reducing impact. Despite these hurdles, the low cost and high satisfaction of volunteer care make it an attractive adjunct to strained healthcare infrastructures.

The broader implications are profound. As chronic disease prevalence rises, scalable models like volunteer palliative care could alleviate pressure on professional staff while meeting patients’ social needs. Its success hinges on structured recruitment, ongoing training, and integration with existing services to ensure consistency and reach. The emotional dividends—patients feeling less alone, caregivers less overwhelmed—underscore its value beyond measurable outcomes, embodying the palliative ethos of care over cure.

Conclusion

Volunteer palliative care significantly enhances social support and quality of life for patients with advanced chronic diseases, offering a compassionate, cost-effective complement to professional services. The evidence demonstrates reductions in loneliness, improvements in well-being, and practical relief for families, driven by volunteers’ unique ability to provide companionship and connection. High satisfaction rates reflect its alignment with patients’ desires for dignity and community in their final stages.

While challenges like volunteer retention and rural access persist, they are addressable through targeted strategies—enhanced training, support networks, and partnerships with local organizations. As healthcare systems evolve, volunteer palliative care stands out as a sustainable model to enrich end-of-life experiences, particularly for those isolated by illness. Its expansion promises not only to improve patient outcomes but also to reaffirm the power of human presence in the face of life’s greatest challenges.

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Citation: El-Sayed A (2025) Volunteer Palliative Care Enhancing Social Support and Quality of Life in Patients with Advanced Chronic Diseases. J Palliat Care Med 15: 763. DOI: 10.4172/2165-7386.1000763

Copyright: © 2025 El-Sayed A. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

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