ISSN: 2161-0711

Journal of Community Medicine & Health Education
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  • Research Article   
  • J Community Med Health Educ 2018, Vol 8(3): 616
  • DOI: 10.4172/2161-0711.1000616

Compliance in the Peer Approaches to Lupus Self-Management (PALS) Study: Program Evaluation and Comparison to Existing Support Modalities for Patients with Rheumatic Conditions

Faith TD1*, Rose J2, Horton R2 and Williams EM1
1Department of Public Health Sciences, Medical University of South Carolina, USA
2Department of Social Work Programs, Hospital for Special Surgery, , New York, USA
*Corresponding Author : Faith TD, Department of Public Health Sciences, Medical University of South Carolina, 135 Cannon Street, Suite 303, Charleston, SC 29425, USA, Tel: 843-792-4844, Email: faitht@musc.edu

Received Date: May 16, 2018 / Accepted Date: May 30, 2018 / Published Date: Jun 04, 2018

Abstract

Background: Peer Approaches to Lupus Self-Management (PALS) was a peer support program tailored to the population most affect by systemic lupus erythematosus (SLE); African American women. Methods: Compliance in the PALS study was measured as weekly phone call sessions completed by each mentoring pair. Additional compliance data were collected from other interventions providing peer support and education with the purpose of improving quality of life and/or disease activity. Compliance data were compared to determine factors associated with higher levels of compliance in this disease population. Results: PALS proved to be a highly acceptable intervention with regard to the counseling, support, and education extended to lupus patients. Compliance data from the program showed that it was highly accessible with 100% of users in the study period completing all of the weekly mentoring sessions. Compared to other interventions, which reported compliance rates ranging from <50-82%, patients in the PALS program were much more compliant to protocols and schedules. PALS compliance was most similar to that of the LupusLine® peer support telephone program, which achieved 97% compliance. Conclusions: Despite limitations, results indicate patient satisfaction, positive impact, and increased compliance with the approach of the PALS study. Other programs in similar populations struggle with compliance, whereas PALS and LupusLine® users were highly compliant. A factor common to both programs was the use of trained peers to deliver support via telephone calls, possibly indicating that this delivery method may be particularly effective for promoting compliance in this population.

Keywords: Systemic lupus erythematosus; Peer mentoring; Program evaluation; Social support; African American; Women; Compliance

Citation: Faith TD, Rose J, Horton R, Williams EM (2018) Compliance in the Peer Approaches to Lupus Self-Management (PALS) Study: Program Evaluation and Comparison to Existing Support Modalities for Patients with Rheumatic Conditions. J Community Med Health Educ 8: 616. Doi: 10.4172/2161-0711.1000616

Copyright: © 2018 Faith TD, et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

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