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Most people are not prepared to do what they need to do when they are told that they have a progressive, degenerative,
incurable chronic disease (for example, Parkinsonâs). Doctors should take on a meaningful role in the discussion of not
just all possible medical ramifications, but also non-medical issues. These include encouraging patients to locate and obtain
information from a Parkinsonâs support center in your area. Discuss with your support center how to tell your family (one of
the emotional heartbreaking things you will ever do). If you are still working, ask your support center if they have the names of
employment lawyers that have experience with Parkinsonâs. Discuss what rights you now have and which ones you think you
might have, but donât. You should discuss if, when, and how you will inform your employer. Ask the local center if they have
a list of benefits lawyers. Realize that you are experiencing a shock to your system and you may not be able to make decisions
as well as you did before. This is a hard one to accept. You may need to run your decisions by someone you trust before taking
action. Meet with your, or find a, financial advisor. You will need to plan ahead so that you donât run out of money after you
are unable to work in your profession. This should be balanced with enjoying the limited number of years that you will have to
ability to do the things that you always wanted to do: travel, etc. Parkinsonâs may have an effect on your ability to multi-task and
your short-term memory. Maybe turn some responsibilities over to your trusted care partner or financial advisor. Recognize
that, although Parkinsonâs is a progressive, degenerative disease, eating a healthy diet and extensive exercise appears, in some
individuals, to slow the manifestations of the disease. So, get a plan together, maybe with the assistance of your local support
center, nutritionist and fitness trainer to improve your lifestyle and stick to it. Finally, it is time to deal with the feelings that
you repressed in order to get through the practical issues. You will need a good therapist. Again, contacting your local support
center for a list of doctors familiar with PD is a great start.
John M Baumann graduated from Cornell Law School in 1986 and, in 2002, at 41 years old, he was diagnosed with Parkinson’s. John worked as an Attorney until 2012 and, from 2004 to 2012, taught at the University of Louisville. In 2008, he reinvented himself into a inspiring success speaker. He has inspired audiences in France, Malaysia, and across the United States and Canada. His book is entitled, Decide Success–You Ain’t Dead Yet. He also collaberated on a book with Deepak Chopra.
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