Journal of Alzheimers Disease & Parkinsonism
Open Access

Abstract

Introduction: The burden of Alzheimer’s dementia greatly impacts patients and their immediate families. Studies on the perspective of caretakers regarding nutrition in patients with Alzheimer’s disease (AD) dementia are lacking. Yet this information is needed to guide clinical care for patients with dementia. The study explored caretakers’ perspective on nutritional challenges faced by patients with Alzheimer’s disease and related Dementias at Butabika National Referral Hospital. Methods: We conducted 20 in-depth interviews and 2 focus group discussions with 20 health workers and 16 caregivers, respectively. The focus group discussions and in-depth interviews were audio-recorded and transcribed. Analysis was conducted using a thematic, constant comparative approach with an emphasis on dominant themes. Results: Participants had a mean age of 37 in the range (27–44) years. Seventeen (47%) of them were males. Their duration of Care for Dementia to patients was in the range (2–7) years. The highest level of education was a bachelor’s degree and the primary level was the lowest. Thirteen (35%) were married and twentythree (65%) were not, and they either survived on salaries or wages as a source of income. The key emerging issues were 1) hindrances to nutritional care in dementia, 2). Factors leading to inadequate nutrition among people with dementia and 3). Recommendations to improve nutrition needs. Conclusion: Caretakers experience challenges ranging from psychotic manifestations of patients to hindrances in provision of nutritional care. A better understanding of their experience is essential for development of interventions to help family members, health workers and other caretakers promote good nutrition in patients with Alzheimer’s dementia. A clear referral system should be established to prevent overcrowding of patients at a mental national referral hospital, ensuring adequate timely nutritional support to those admitted. Capacity building programs should continue addressing the knowledge gap in nutrition of patients with Alzheimer’s dementia.

Biography

Edwin Kigozi is an intern Nurse who has just completed a Bachelors’ Degree in Nursing at Makerere University. He has been a Vibrant Students’ Leader, Peer Mentor, as well as a Research Mentee under the Health Education Professionals’ Initiative(HEPI) at Makerere University College of Health Sciences, Uganda. He recently served as President Makerere University Nursing Students’ Association(MUNSA). He is the current Makerere University Ambassador for Patient Centered Care Movement Africa, a student-led initiative promoting patient-centered care in Africa. He has championed the organization of several health promotion and disease prevention campaigns including workshops, health camps as well as Global cerebrations like the World breast feeding week under his leadership. He is passionate about Universal Health Coverage focusing on health promotion and disease prevention.