Pediatric Palliative Care: Identification of the Referral Process and Collaboration of the Pediatric Palliative Care Team and the Primary Care ProviderDonna Marvicsin1*, Carissa Bonner2 and Lisa Jean3
- *Corresponding Author:
- Dr. Donna J. Marviscin
School of Nursing, University of Michigan
400 North Ingalls, Room 3187, Ann Arbor
Michigan 48109-5482, USA
Tel: 734 647 0351
Fax: 734 647 0351
E-mail: [email protected]
Received date: February 08, 2012; Accepted date: March 24, 2012; Published date: March 26, 2012
Citation: Marvicsin D, Bonner C, Jean L (2012) Pediatric Palliative Care: Identification of the Referral Process and Collaboration of the Pediatric Palliative Care Team and the Primary Care Provider. J Palliative Care Med 2:111. doi:10.4172/2165-7386.1000111
Copyright: © 2012 Marvicsin D, et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Purpose: The Pediatric Palliative Care Research Network (PPCRN) is a network of pediatric palliative care hospital programs in the United States and Canada. The objectives of this study were 1.) To determine the referral process to Pediatric Palliative Care (PPC) programs identified in the United States and Canada and 2.) To identify the role of the primary care provider collaboration within the PPCRN. This information was then used to develop a patient education tool for the pediatric primary care provider within the community. The tool could initiate an early referral to PPC, increase access to these services, and improve the quality of life for these children and their families.
Methods: Surveys were sent via email to the 9 PPCRN programs to evaluate the referral processes and the role of the primary care provider within their respective PPC programs.
Results: 5 out of the 9 PPCRN programs responded to the survey. Only 2 PPCRN programs identified collaboration with the primary care provider at initial referral and offered a continued multidisciplinary approach throughout the course of the child’s illness. The majority of referrals occur at end-of-life and/or non-curative stage of disease.
Conclusion: Further research needs to be conducted to recognize the barriers of referral at diagnosis despite current guidelines. The possibility of a flagging system for diagnosis criteria should be explored in order to increase identification of children in need of PPC for referral.