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Mads Holme
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Objective: Paroxysmal Nocturnal Hemoglobinuria (PNH) is a rare, potentially fatal hematological disorder. Despite the complement 5 inhibitor (C5i) treatment, patients with PNH continue to experience significant burden of illness and reduced Quality of Life (QoL). This Japanese ethnographic study assesses what it means for patients to live well with... Read More»
Takayuki Ikezoe, Sayoko Murakami, Jun ichi Nishimura, John Stevens, Anne Mette Worsøe Lottrup, Mads Holme, Katherine Kamel, Natasha Jessen-Petersen, Takeshi Hayashi, Masato Fujii and Akihiko Gotoh
: J Community Med Health Educ
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