ISSN: 2161-0711

Journal of Community Medicine & Health Education
Open Access

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Natasha Jessen-Petersen

Japan
Publications

A Japanese Ethnographic Study to Identify the Daily Challenges of Patients with Paroxysmal Nocturnal Hemoglobinuria

Objective: Paroxysmal Nocturnal Hemoglobinuria (PNH) is a rare, potentially fatal hematological disorder. Despite the complement 5 inhibitor (C5i) treatment, patients with PNH continue to experience significant burden of illness and reduced Quality of Life (QoL). This Japanese ethnographic study assesses what it means for patients to live well with... Read More»

Takayuki Ikezoe, Sayoko Murakami, Jun ichi Nishimura, John Stevens, Anne Mette Worsøe Lottrup, Mads Holme, Katherine Kamel, Natasha Jessen-Petersen, Takeshi Hayashi, Masato Fujii and Akihiko Gotoh

: J Community Med Health Educ

Abstract Peer-reviewed Full Article Peer-reviewed Article PDF Mobile Full Article

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